Today is World Diabetes Day. This is unfortunately significant to me now, and it's the reason I've been gone for a few weeks.
The last time I posted, I wrote about my son throwing up in the middle of the night. The next day, he became delirious and by the evening he fell into unconsciousness. He was completely unresponsive. The nightmare that followed included a harrowing drive to the emergency room, followed by a week in the pediatric ICU. He had DKA (
diabetic ketoacidosis) and pancreatitis.
I am not ready to write in detail about that night yet because I'm not ready to mentally relive it. And there are no words anyway, to accurately describe what it feels like to wonder if your child will make it to the emergency room. To wonder, in heart-shredding disbelief, if those eleven years were all I would have with him. To drive a car with one hand while holding up his slumped body in the passenger seat with my other arm, constantly maneuvering my hand to feel under his nose that he was still breathing, crying and begging non-stop for him to wake up, to hear my voice, to say something. With his little sisters in the back seat, crying and begging him for the same. Mentally cursing every red light, wondering if that red light would be the difference between life and death. There are no words that I can write that would make anyone understand what that feels like. Unless you are a parent who has also looked at your child, afraid that he was going to die right before your eyes, you can't understand what it feels like. I can't say any more than that right now.
The week that followed was spent in the PICU. Vomiting blood, a stomach tube kept in for days through the nose, IVs in both arms, oxygen tubes, heart monitors, blood pressure cuffs, blood tests... Thankfully, every day was better than the day before as he slowly gained awareness and began to eat again after several days.
Fast forward three weeks.
We are home. He is healthy. I am grateful beyond comprehension. He has Type 1 diabetes. He will need to give himself insulin shots several times a day for the rest of his life, unless a cure is discovered in his lifetime. He has to monitor every food intake and supplement accordingly with an insulin shot. He will have to closely monitor his physical activity. He will have to constantly maintain his blood sugar levels so that he doesn't go too dangerously low or high. I now wake up at 2 am each night to test his blood sugar level and administer care if necessary. I plan his meals meticulously. I keep a log of everything he eats, his blood sugar levels and amount of insulin given throughout the day. Our daily lives have changed dramatically.
But he is
alive. And his condition, though a far stretch from the carefree, spontaneous life he was used to, is manageable. My beautiful son is still with me. Nothing could
ever feel as good and right as that feels.
~ Kiki
Tarot Dame